Right...where shall we start? We're still no nearer knowing what is going on, but in the meantime they are working on the basis that it was a mini stroke as this fits most of the symptoms etc. and that the added sickness etc. are to do with an separate bug - which Su and I both have now! Su has been feeling better since this morning and I started mid afternoon - so pray that by tomorrow morning that will have worked its way through the system!
They wanted R to have an MRA scan this afternoon - like an MRI apparently, to look at the blood coming into her brain from her neck. But R had totally had enough, and it is a scary machine when you're only four, so they will do it on Monday and sedate her first.
Tomorrow we are off to the Brompton for an Echo, and then on Tuesday it is back to GOSH for an ECG - so off to some of our favourite places! At least going by ambulance we don't have to pay congestion charges or parking. They also want to do a series of blood tests - not usual ones - the kind that takes several weeks for the results to come back - so they'll do that on Monday too.
But as I say R has had enough. It takes two to give her medicines amidst much shouting of 'no' and 'leave me alone', she refuses to have her blood pressure taken - she's not feeling well, is scared, doesn't know what is going on and just wants to be better and go home.
The other two, S & A are spending the weekend with some of their cousins, so hopefully will have a lovely time, and this does give us a lot more flexibility.
So, please keep praying for us all.
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