When Su and R got back from GOSH the doctors at NP said that R could come home straight away, with aspirin (disguised as a Petits Filous), so when I arrived it was just in time to help with the packing up process. R was very happy and excited, rushing around and making sure that all the drawers and cupboards were empty. She really was back to her old self.
They still don't know what happened or why or whether it could happen again - but there is no need for R to stay in hospital until they do the tests. The remaining tests may not happen for another six weeks (we'll let you know when - and what the results are). What we do know is that in the meantime R isn't sleeping on the top bunk - something that will delight S no end!
It has been a hard week, but we have a lot to be thankful for. We thank God that I 'just happened' to be outside R's room when this happened - almost anywhere else in the house and we wouldn't have heard a thing. We thank God for answered prayers. We're thankful for you, for your love and support and prayers - for those who got in touch, for the many offers of help, for those who prayed, for the more than 300 of you who logged into my blog for the first time this week to follow what was happening and to pray. We're thankful for the NHS and the staff - even if R won't miss them one little bit in the morning.
So that just leaves one thing to decide - what shall I blog about tomorrow: something from Hebrews 4, our new Prime Minister, the book I'm reading at the moment...
Once again our paths have crossed and you have journeyed this bit with us. Thanks for being there. Love Keith and Su.
Tuesday 11 May 2010
Monday Update
As I write this Su and R are on an ambulance making their way back to Northwick Park from GOSH, so I will head of in a bit and get a full update on the day. Much of it, I gather, was spent waiting for ambulances - finally leaving NP at 11am for a 10am appointment at GOSH. Just as well we don't know in advance when accidents would happen - because if we had to book ambulances the night before for an emergency the following morning ...
R only had the EEG today, but let that happen with minimal fuss which is good news. As far as answers we still don't know. R saw a number of people and the opinion is that there is still a very slight weakness on one side of her face - which would suggest a stroke. But what was showing up on the MRI almost certainly happened at birth rather than being new damage - which would suggest a seizure. The EEG on its own didn't solve the puzzle.
R saw the specialist at GOSH who has received all her notes etc and he will book her in for an ECHO and an MRA as an outpatient in his clinic - this may be in weeks rather than days. R was very much back to her normal self today apparently - which is good news, for which we thank God. I think they may well be looking at sending her home in the next few days, on aspirin, while they wait to do those further tests.
I'll update later if there is more to know.
'A' saw the doctor this afternoon - just a virus. And is now on the BRAT diet (bananas, rice, apples, toast) until that clears up. She managed the rest of the day without going through any more sets of clothes.
R only had the EEG today, but let that happen with minimal fuss which is good news. As far as answers we still don't know. R saw a number of people and the opinion is that there is still a very slight weakness on one side of her face - which would suggest a stroke. But what was showing up on the MRI almost certainly happened at birth rather than being new damage - which would suggest a seizure. The EEG on its own didn't solve the puzzle.
R saw the specialist at GOSH who has received all her notes etc and he will book her in for an ECHO and an MRA as an outpatient in his clinic - this may be in weeks rather than days. R was very much back to her normal self today apparently - which is good news, for which we thank God. I think they may well be looking at sending her home in the next few days, on aspirin, while they wait to do those further tests.
I'll update later if there is more to know.
'A' saw the doctor this afternoon - just a virus. And is now on the BRAT diet (bananas, rice, apples, toast) until that clears up. She managed the rest of the day without going through any more sets of clothes.
Change of Plan
Just to let you know that the plans have changed - but not sure how much by yet.
I'm now staying at home to look after the girls as my mum now has the bug that we've all had - and A still seems to have - so I'm taking her to the doctor this afternoon as it's been a week for her now - everyone else gets it for about 24 hours - but the sooner she stops infecting anyone who looks at her the better! The only one who has not had it is S.
The last I heard Su and R were still waiting for them to find an ambulance to take them to GOSH for 10am - so starting to get a little tight on time.
Need to rush S to playgroup. I'll be back later when I know more.
I'm now staying at home to look after the girls as my mum now has the bug that we've all had - and A still seems to have - so I'm taking her to the doctor this afternoon as it's been a week for her now - everyone else gets it for about 24 hours - but the sooner she stops infecting anyone who looks at her the better! The only one who has not had it is S.
The last I heard Su and R were still waiting for them to find an ambulance to take them to GOSH for 10am - so starting to get a little tight on time.
Need to rush S to playgroup. I'll be back later when I know more.
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