Got back from the hospital a little while ago. R was pretty much asleep the whole time. We woke her up to take a couple of spiked Petits Filous which she ate no problem, but she was very withdrawn. Got a couple of nods but no words. She identified all the fairies out of Tinker Bell by pointing to them, and then she went back to sleep. Hopefully she'll wake up a bit happier tomorrow.
All I know about tomorrow is that she's booked into GOSH, and the ambulance is leaving at 8.30am. I may have to take the tube - but that should beat the ambulance anyway at that time in the morning. Not sure which or how many of the tests she is having done, but it will be a general anesthetic as she is not allowed to eat after midnight - presumably it is the whole lot. [Every time I mentioned an ECG I think it should have been an EEG].
I'll let you know how we get on tomorrow evening - we may even start to have some answers by then.
Monday, 10 May 2010
Plan D
How do you get a child, who is refusing all treatment, to have an MRA scan?
Plan A: Sedate them.
Problem: Won't take the medicine orally.
Plan B: Put the two sedatives in two Petits filous, one raspberry and one peach.
Problem: May taste the difference and refuse to eat them.
Further problem: child may never eat yogurt again!
Plan C: Give a different sedative using the line already inserted in her wrist.
Problem: She may be so attuned to danger that the moment you lift her onto the table of the MRA machine she will wake up screaming.
Plan D: General anesthetic
As you may have guested we had a few hitches with the sedation approach to getting R's MRA scan done today. Even sedated R was still alert whenever and doctors tried to do anything to her!
Once safely back in her room she slept soundly for a couple of hours but was still obviously very cross with everyone when I left earlier to come home and see S & A.
So it seems that the only option left now is to make a list of all the things they want to do and to see whether they can all be done at GOSH, all at once, under a general anesthetic. Whether that will all be possible tomorrow or not, I hope to find out when I go back to the hospital a little later.
When I arrived at the hospital this morning R was continuing to make good progress, playing with toys, doing some writing and colouring, watching Cinderella videos...
Plan A: Sedate them.
Problem: Won't take the medicine orally.
Plan B: Put the two sedatives in two Petits filous, one raspberry and one peach.
Problem: May taste the difference and refuse to eat them.
Further problem: child may never eat yogurt again!
Plan C: Give a different sedative using the line already inserted in her wrist.
Problem: She may be so attuned to danger that the moment you lift her onto the table of the MRA machine she will wake up screaming.
Plan D: General anesthetic
As you may have guested we had a few hitches with the sedation approach to getting R's MRA scan done today. Even sedated R was still alert whenever and doctors tried to do anything to her!
Once safely back in her room she slept soundly for a couple of hours but was still obviously very cross with everyone when I left earlier to come home and see S & A.
So it seems that the only option left now is to make a list of all the things they want to do and to see whether they can all be done at GOSH, all at once, under a general anesthetic. Whether that will all be possible tomorrow or not, I hope to find out when I go back to the hospital a little later.
When I arrived at the hospital this morning R was continuing to make good progress, playing with toys, doing some writing and colouring, watching Cinderella videos...
Morning
For those of you who were wondering what I was doing writing the last blog early this morning, rather than giving A & S their breakfast - it was a scheduled post - I wrote it last week sometime to post automatically this morning, and forgot all about it until it popped up on my screen just now!
Nothing new to report this early. A & S both had a good night, S is still asleep and A is tucking into her cherrios - so must go!
Nothing new to report this early. A & S both had a good night, S is still asleep and A is tucking into her cherrios - so must go!
Online Bibles
This coming Sunday evening we are going to be doing the third is our once a month series looking at different methods of studying the Bible, based on Rick Warren's Bible Study Methods.This week we are looking at Thematic Bible Study - where we will learn about searching the Bible to see what it says on a particular theme. This involves picking a theme, choosing a few questions to ask, and then searching the text for a variety of key words.
One study I am looking forward to doing, in the not too distant future, is looking to see the things that Paul prayed for the churches he was involved in.
I will search on the words pray, prayer, prayers etc (pray*) from Romans to Philemon; and will ask the questions:
1) What does Paul pray for others?
2) What will be the outcome of these prayers?
One way of generating a list of verses would be to look in a concordance. But I have recently been directed to an online Bible that allows you to search part of the Bibles for words or phrases. If you're interested in this sort of thing, it is worth checking out. Click on the link below.
www.blueletterbible.org
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