Saturday evening

As far as progress goes, R is feeling a little better - I think she must be over the worst of the bug. She had a jam sandwich this afternoon, and then wanted mummy's rice pudding - all of which have stayed down. She is still not drinking enough so has fluids by drip, and her temperature keeps going up to close to 40 deg C.

But we are no nearer finding any answers. We did go to the Brompton but R has had enough of tests and so they couldn't do anything. At one point we got her to sleep, but then as soon as the ultrasound probe touched her she was awake and screaming and kicking and crying again - and the scan only works if she is still and calm!! Not even a Peppa Pig DVD made the slightest impact.

As I said before R also needs an ECG at GOSH (Tuesday) and an MRA (Monday). One option that they are exploring is to see whether GOSH will be able to do everything at one go with R under sedation. She just doesn't trust doctors anywhere near her at the moment. One of the doctors was wanting to give her some stickers this afternoon for being such a good girl and she wouldn't let him near her, so the stickers are still on the side.

So thank you for praying and continue to pray please - especially for peace for R - she's had a scary few days and has had about as much as she can take. They couldn't get her to take her aspirin this evening, and when it gets to the point of coming home, she will need to be happy taking calpol etc. It is hoped that a quieter day tomorrow, with little interference from doctors etc will help. I'm sure the peace of God that transcends all understanding applies for 4 year olds too.

Saturday morning

Just a quick note before I'm off to the hospital. I have spoken to Su and R this morning. Su is feeling much better, and R had a ten minute spell of non stop talking - which is good. She also had a good night and some breakfast. She has flagged again since then, but it seems as though the worst of the bug may have passed and it is that that has been making her feel so unwell - on top of everything else! I feel much better this morning too.

S & A are both having fun.

So today we're off to the Brompton at 11am for a midday scan. We then wait while they write the report and send us back.

More later.