Tuesday 11 May 2010

Monday Update

As I write this Su and R are on an ambulance making their way back to Northwick Park from GOSH, so I will head of in a bit and get a full update on the day. Much of it, I gather, was spent waiting for ambulances - finally leaving NP at 11am for a 10am appointment at GOSH. Just as well we don't know in advance when accidents would happen - because if we had to book ambulances the night before for an emergency the following morning ...

R only had the EEG today, but let that happen with minimal fuss which is good news. As far as answers we still don't know. R saw a number of people and the opinion is that there is still a very slight weakness on one side of her face - which would suggest a stroke. But what was showing up on the MRI almost certainly happened at birth rather than being new damage - which would suggest a seizure. The EEG on its own didn't solve the puzzle.

R saw the specialist at GOSH who has received all her notes etc and he will book her in for an ECHO and an MRA as an outpatient in his clinic - this may be in weeks rather than days. R was very much back to her normal self today apparently - which is good news, for which we thank God. I think they may well be looking at sending her home in the next few days, on aspirin, while they wait to do those further tests.

I'll update later if there is more to know.

'A' saw the doctor this afternoon - just a virus. And is now on the BRAT diet (bananas, rice, apples, toast) until that clears up. She managed the rest of the day without going through any more sets of clothes.

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