Right...where shall we start? We're still no nearer knowing what is going on, but in the meantime they are working on the basis that it was a mini stroke as this fits most of the symptoms etc. and that the added sickness etc. are to do with an separate bug - which Su and I both have now! Su has been feeling better since this morning and I started mid afternoon - so pray that by tomorrow morning that will have worked its way through the system!
They wanted R to have an MRA scan this afternoon - like an MRI apparently, to look at the blood coming into her brain from her neck. But R had totally had enough, and it is a scary machine when you're only four, so they will do it on Monday and sedate her first.
Tomorrow we are off to the Brompton for an Echo, and then on Tuesday it is back to GOSH for an ECG - so off to some of our favourite places! At least going by ambulance we don't have to pay congestion charges or parking. They also want to do a series of blood tests - not usual ones - the kind that takes several weeks for the results to come back - so they'll do that on Monday too.
But as I say R has had enough. It takes two to give her medicines amidst much shouting of 'no' and 'leave me alone', she refuses to have her blood pressure taken - she's not feeling well, is scared, doesn't know what is going on and just wants to be better and go home.
The other two, S & A are spending the weekend with some of their cousins, so hopefully will have a lovely time, and this does give us a lot more flexibility.
So, please keep praying for us all.
Friday, 7 May 2010
Update for Prayer
Just a quick note before I head out the door to take S to playgroup. R had a stable night and we wait to see what GOSH say. But Su has been sick throughout the night. They are allowing her to stay with R but have asked that she go and get checked at A&E.
For the third night running A has been sick a number of times, but seems fine during the day. There is a bug going around apparently! She is now getting quite unsettled: doesn't want to be put down etc. but then she's too young to understand what's going on. Needless to say that it doesn't make for a good night's sleep - at least there was the election progress to watch!
Thank you for continuing to remember us in your prayers.
For the third night running A has been sick a number of times, but seems fine during the day. There is a bug going around apparently! She is now getting quite unsettled: doesn't want to be put down etc. but then she's too young to understand what's going on. Needless to say that it doesn't make for a good night's sleep - at least there was the election progress to watch!
Thank you for continuing to remember us in your prayers.
Thursday, 6 May 2010
Another trip to A&E
For those of you who have already heard some of what I am about to write, and have been praying for us - thank you very much. I figure that this is the easiest way to keep the greatest number of people up to date.
Yesterday evening our eldest daughter, R, (aged 4), was taken into hospital having experienced what was most likely either a fit or a mini stroke. When we found her in her bed she was unable to speak or support herself, or even keep her head up. Needless to say it was a seriously scary time.
By the time she left in the ambulance she still had no movement down her right side, and not able to speak.
By the time I reached the hospital some time later she had started to speak a few words and had just started to move her right arm and leg. But she was confused and scared by what was going on.
This morning she was a lot better, and had been able to walk about and was saying a lot more, but there is still a slight weakness on the left side of her face - although only really noticeable when she smiles - which is not often at the moment! But she still has a temperature, and was sick again this afternoon, and has not really eaten anything all day.
She was very brave for the MRI scan - but the results are still not clear. There is evidence of a possible bleed, but this is on the wrong side of the brain for right side paralysis. Also they don't know where the temperature, sickness etc. fit with what they'd expect. So all the results have been sent off to Great Ormond Street - who also want to see the MRI scan that was taken when R was two and half weeks old - so that they can compare the two.
Although no infection was found on the original blood tests, further tests repeated today showed slight possible signs of infection. So that is another possible cause.
In the meantime GOSH have recommended aspirin just in case there is a clot in the brain.
And because they don't know what they're dealing with they have put R in a side room - the only drawback is that being a children's ward the TV and radio stop at 9pm! Su was hoping to watch the election results all through the night!
Thank you for your prayers and your texts etc. I'll post an update tomorrow when we know more.
Yesterday evening our eldest daughter, R, (aged 4), was taken into hospital having experienced what was most likely either a fit or a mini stroke. When we found her in her bed she was unable to speak or support herself, or even keep her head up. Needless to say it was a seriously scary time.
By the time she left in the ambulance she still had no movement down her right side, and not able to speak.
By the time I reached the hospital some time later she had started to speak a few words and had just started to move her right arm and leg. But she was confused and scared by what was going on.
This morning she was a lot better, and had been able to walk about and was saying a lot more, but there is still a slight weakness on the left side of her face - although only really noticeable when she smiles - which is not often at the moment! But she still has a temperature, and was sick again this afternoon, and has not really eaten anything all day.
She was very brave for the MRI scan - but the results are still not clear. There is evidence of a possible bleed, but this is on the wrong side of the brain for right side paralysis. Also they don't know where the temperature, sickness etc. fit with what they'd expect. So all the results have been sent off to Great Ormond Street - who also want to see the MRI scan that was taken when R was two and half weeks old - so that they can compare the two.
Although no infection was found on the original blood tests, further tests repeated today showed slight possible signs of infection. So that is another possible cause.
In the meantime GOSH have recommended aspirin just in case there is a clot in the brain.
And because they don't know what they're dealing with they have put R in a side room - the only drawback is that being a children's ward the TV and radio stop at 9pm! Su was hoping to watch the election results all through the night!
Thank you for your prayers and your texts etc. I'll post an update tomorrow when we know more.
Wednesday, 5 May 2010
Baptist Assembly 2010
We've been away this weekend at the Baptist Assembly in Plymouth. We all had a great time, including the girls who loved the children's programme. I may well blog on a couple of the sessions over the next couple of weeks - but no promises! In the meantime here is the official photo montage of the event.
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